This palliative care thing, really? I have a doctor that is about 20, thinks my disease is for elderly folks who have no complaints, or even need treatment. So, as he goes about discussing this with my doctor, I continue down the road of frustration. Do you even know how hard it is to have a rare disease, one that no one seems to understand, yet expects you to be positive? It is dragging the life out of me, day after day; so why do I have anxiety?
Our beach trip was a beautiful success. Had a good time. It was cold, and then warmed up. The water is too cold for me but it was refreshing to get away and see my best friend. Ansley is growing up so quickly, so proud of her and the young woman she has become. We have been blessed to be a part of her life.
Next up? GRADUATION! Finally, the time has come. I am excited, but apprehensive because of the travel and feeling so yucky. I have to put my best feet forward and just keep it moving. This disease, cancer...MPN, whatever...I have to just keep fighting it every single day and pursue my dreams. There is nothing else to do but accept it, and keep truckin'! No one else can do this but me, and God has given me the strength, courage, and hope to live this battle with grace and dignity. Even if I have to remind myself daily, or every moment, I know He is with me, and my life is already going as He planned. He knew every hair on my head before I was born, my life is destined to what He has already planned and I have submitted to His Will for my life, a long time ago. Do I fall? Do I fail? Heck yes! Wouldn't be human if I didn't make mistakes along the way. I certainly have no regrets, zip!
