It Is Only Tuesday....ARG!

It's only Tuesday, first of all, I need some new batteries in my keyboard; I need to fix the screen on my IPhone, because that thing is an important part of my life-school, jobs, school, after school programs, blah blah blah...the list goes on.  I digress...

Liz is home from school today, which sets me back on my goals a bit; it is hard to focus on the needs of a 7 year old, and be a mom with cancer.  Somehow that sentence is going to become a jumping point for a series of blogs, soon as I get organized, again.

For this week, I have a new goal.  I am enrolled in a pilot app study for meditation, while using a Fitbit-all for the Doctors at Arizona State University, under the direction of Dr. Reuben Mesa and the Mayo Clinic.  So excited.  I worn the thing for week one, to assess my baseline activity and sleep patterns.  I desperately need help in the sleep category; my sleeping has decreased due to pain and illness.  I am hoping to learn a few things about myself, and my daily life-yet also excited to have a purpose.  This study will help MPN sufferers in the future, AMEN.

We, like everyone in my house has this disease-are embarking on a new direction in our journey with cancer.  So far, palliative medications haven't help for symptomatic burden.  I am currently doing a two week trial of steroids, while patiently waiting for all the results to come in from labs and biopsy.  While some think I am crazy, duly noted...I have prayed for worst case scenario, because that is the only opportunity that I have for a shot at LIFE.  I have to be worst before they will even consider fixing me.  And no, stem cell transplant is not without complications, even earlier death-I DON'T CARE.  I am a strong persistent woman, who will not give this life up without a fight.  I have so much love to give, surely God is just showing me how strong I really am before stepping out in the criminal justice arena. LOL. 

I WANT:
to live
to work
to see my children grow
to love
to save innocents
to help spread justice
to see the world experience true peace

Ok for now.  I am going to work on my first CALM application.  I will then come back and freshen up the blog, ready to attract new readers.  Then I will share links and more information about the CALM application!  Couldn't we all use a little CALM in our lives?  I think so!

believe and you will receive